That was when my life turned upside down. A man who had been a friend, and then slowly became my lover, was diagnosed with a terminal illness. I was a single mother, with three children. I had no idea what Amyotrophic Lateral Sclerosis (ALS.) was, nor the devestating effects of what would happen. I had no idea what this would mean for either of us, nor my children. I knew that it wouldn’t be easy, but I also knew that I would stay by his side, and care for him.
I began writing as a way to process all the emotions that have nowhere to go. Unless you have cared for someone who has lived with ALS, you can never truly understand the roller coaster ride that awaits you. ALS is not something one can prepare for. I write to advocate, I write to inform…but mostly, I write for me.