That was when my life turned upside down. A man who had been a friend, and then slowly became more to me, was diagnosed with a terminal illness. I was a single mother, with three children. I had not idea what Amyotrophic Lateral Sclerosis (ALS.) I had no idea what this would mean for either of us, or my children. I knew that it wouldn’t be easy, but I also knew that I would stay by his side, and care for him.
I began writing as a way to process all the emotions that have nowhere to go. Unless you have cared for someone who has lived with ALS, you can never truly understand the roller coaster ride that awaits you. ALS is not something one can prepare for. I write to advocate, I write to inform…but mostly, I write for me.